Lupus Europe is a pan-European nonprofit umbrella organization that represents national lupus patient groups across Europe. It works to improve the quality of life for people living with systemic lupus erythematosus (SLE) and related conditions by bringing the patient perspective into research, healthcare policy, and clinical practice.
The organization coordinates patient engagement in clinical studies and regulatory consultations, runs surveys and real‑world evidence initiatives, develops educational resources, and fosters collaboration among patient organizations, clinicians, researchers, and policymakers. Lupus Europe does not develop or market therapies; its focus is on advocacy, awareness, and patient-centered initiatives that support earlier diagnosis, effective care pathways, and better outcomes for those affected by lupus.
